Sunday, June 21, 2009
Wednesday, June 17, 2009
We learned yesterday afternoon that Stanford Cancer Center has found two donor matches for Nick out of the thirteen potential matches that had been developed by the national registry. Human leukocytes antigen (HLA) typing is used to match patients and donors for transplants. The immune system uses these antigens (markers) to recognize which cells belong in your body and which do not. Stanford was searching for a set of ten markers for the best match. Each of the two donor matches that were discovered, match ten out of ten criterion markers. Further evaluation needs to occur on the two donors by Stanford before a final selection can be made. Moreover, up until the actual transplant event, the national registry will continue to search for other possible donors that might make an even better match.
In any event it looks like Nick is going to get his chance at a transplant procedure which is heartening indeed for all of us. Nick and his family are so very grateful to all those people behind the scenes at EMC, as well as the other large companies that joined in, The Asian-American Donor Program, the Be The Match Donor Program, all the media involved, and the Stanford/Kaiser medical teams that have helped bring about this hopeful development. We are equally thankful for all of the outpouring of personal support by individuals all over this land and around the globe for their good wishes, prayers, support, and for all the donor volunteers who have come forward this past month.
Five weeks ago, we received the devastating news that there was 0% chance of finding a donor. Due to all of the overwhelming support and response to our call to action, not one, but TWO 10 out of 10 matching markers have been found and secured. We have not been told who these angels are due to confidentiality reasons, but we are so grateful for them! Both donors will be prepped, as well as Nick, for a transplant, which should take place within 30 days. Nick still has a long road ahead of him, so we ask that you continue to keep him, as well as both donors, in your thoughts and prayers for a successful transplant. We ask you to continue to spread the word for the need for donors, as Stanford will continue to search for even more perfect matches, until the actual transplant day. Also, we never want any family to experience the hopelessness of not being able to find a donor match. The harsh reality is that there are thousands of people just like Nick waiting for a donor match to be found. Time is ticking away and they need your help too. Please continue to spread the word that every person ‘in good health’ should be tested and enlisted into the registry. Time is of the essence! This is Nick’s wish, and ours, that every person should have a fighting chance!
Thank you from the bottom of our hearts and God Bless!
Tuesday, June 16, 2009
On Monday, we embarked upon a new chapter...Elementary school. Belle was accepted into the afterschool program (thank God!!!) and is attending the summer program before the actual school year begins. It was a little (read VERY) nerve wracking for Mommy and Papa to drop our little girl off into the big fish pond. She jumped right in and didn't seem to care less that we were leaving. She had a fabulous 1st day and is quickly making friends. She was a little "too busy" to eat lunch though. Sigh. Here's to hoping that she has many more fabulous days...and time for lunch.
My sweet Isabelle, in the great words of Dr. Seuss..
"Congratulations! Today is your day. You 're off to Great Places!
You 're off and away! You have brains in your head.
You have feet in your shoes. You can steer yourself any direction you choose.
You're on your own. You know what you know.
And YOU'RE the girl who 'll decide where to go...."
"And will you succeed? Yes, you will indeed! 98 3/4% guaranteed.
So...you 're off to great places. Today is your day.
Your mountain is waiting. Get on your way."
Monday, June 15, 2009
(sorry for the rotating flub...still trying to figure this out!)
Off to work I went. I had a sweet surprise of flowers and a gift card to a spa some very dear friends delivered.
Sunday it was time for a bday date with my handsome hubby. We went to our favorite place, Horatios.
Dinner was devine! And the dessert, burnt custard, was unbelievable as well! They never dissapoint. The hubby indulged me in a little walking around so I could take some pics. Loving my new camera!
Today was the end of my bday weekend celebration. The hubby and I both took the day off of work. I went to use my gift card at the spa while he ran some errands. I was so relaxed I could float away! *Note to self, fit in massage fund into the monthly budget* Then we went to lunch and to see a movie. I couldn't have hoped for a better birthday weekend! Here's to hoping for many more!
Tuesday, June 09, 2009
*please note, I am clothed in this picture...strapless dress..
*Forgive the crappy photo quality, they kept changing up the lights, and my flash was not too happy.
Melinda...she's a W-O-M-A-N
"I'm soooo tired..."